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Polly Young-Eisendrath's avatar

Thanks so much for writing this: it’s well written and thoughtful and frank. I am a psychologist, a writer and a “survivor” of shepherding my late husband through ten years of early Alzheimer’s disease. I wrote a memoir about the experience, “The Present Heart: A Memoir of Love, Loss and Discovery.” The discovery part is how much I learned from the illness, the defeats, the vulnerabilities and also the hilarity (yes) of human decline. There are many ways to laugh at the absurdity of what we are all caught in: the great adventure of birth and death. I also took care of my first husband, 15 years my senior, for five years during the ten years of my second husband’s decline. My son, whose father was my first husband, brought his dad to my home while my ill husband was in the care center 25 miles up the road. First husband — who introduced me way back there to Zen Buddhism — suffered from mild cognitive impairment. I was at first angry and overwhelmed and then I became interested in whether I could take on the whole project (with a full time clinical practice and grown children and grandchildren). I could and I did and I learned a lot from it all. Why am I recounting this? Well, simply to say that these experiences were surprisingly fascinating. I am also a Zen practitioner. My attitude towards what happens seems to matter more than the actual happenings and circumstances. And I am no saint. In fact, I cringed and winced and was terrified as much as the next person. And yet, I retained an alert curiosity about what was happening. For this reason, I don’t want to check out prematurely. I do not know what it will be like precisely like for me to fail in life or physical activity. Thus far, I am doing ok, but I am interested in the adventure of failing as much as succeeding each day. Perhaps different from you, I value the complexity of illness and decline as much as the pleasure of health and risk-taking. We are all, in fact, different in our approaches to mortality and health, as your essay points out. I simply want to vote for the whole package — both the healthy and the unhealthy parts. None of it is fair or just, but it’s all interesting.

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John Raisor's avatar

I believe that many of the people who fight to live as long as possible can't bear the chance that they'll lose their identity and ego.

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